Guidelines under udarbejdelse

Pancreascancer, guideline for genetisk udredning, forebyggelse og opfølgning – Tovholder Mads Hauberg
Håndtering af patienter med varianter i COL4A3, COL4A4 og COL4A5 – Tovholder Maria Rasmussen

juni 2026

03junAll Day04ECRD Congress - Rare Diseases in a Changing & Competitive Europe

03junAll Day04European Conference on Rare Diseases & Orphan Products (ECRD)

11junAll Day12ESHG course - Clinical NGS Data Interpretation Course

12junAll DayESHG course - Teach the teacher Genetics

13junAll Day16European Human Genetics Conference

25junAll Day28INSPiRED 2026 - International Society for Pediatric Respiratory Diseases Congress

27jun(jun 27)8:0030(jun 30)16:00Congress of the European Academy of Neurology - Geneva (Switzerland)

august 2026

25augAll Day26Gene Forum - 25th anniversary conference

september 2026

05sepAll Day09European Epilepsy Congress

07sepAll Day11Basics in human genetic diagnostics – A course for CLGs in education

13sepAll Day16EUFASD Conference 2026

Event detaljer

Fetal Alcohol Spectrum Disorders (FASD) are a major public health problem worldwide: alcohol consumption during pregnancy is one of the leading non-genetic and potentially preventable causes of neurodevelopmental disorders (NDDs) and lack of social integration.

In France, for example, it is estimated that nearly 5,000 children are born each year with brain damage due to prenatal alcohol exposure. Rarely screened and then underdiagnosed, these particularly vulnerable children will face disabilities both at school and in everyday life. In adulthood, around 500,000 people are affected to varying degrees. Most of them are unaware of the cause of their troubles and do not receive any specific support, with considerable individual and collective human costs.

However, early detection, diagnosis, and appropriate support starting in early childhood can make a difference and enable each of these people to develop their full potential for a better integration and participation in society.

Awareness of FASD is poor among the general public and even among healthcare professionals, who need an improved training on the subject. Furthermore, fundamental and clinical research is essential to bring about change in FASD and other NDDs: but here again, investment is not in line with the challenges.

In this context, the EUFASD 2026 Conference is an exceptional opportunity at the European level to highlight the issue of FASD and to support objectives aiming at structuring the community of associations, healthcare and support professionals, as well as researchers.

More information

Dato og tid

13. september 2026 - 16. september 2026 (All Day)(GMT+02:00)

Kalender GoogleCal

16sep(sep 16)9:0019(sep 19)18:00EuroDysmorpho, Pavia

22sepAll Day25ESHG course - Hereditary Cancer Genetics

oktober 2026

13octAll Day15Reframing Precision Medicine: Innovation to Implementation

16octAll Day17EPNS Research Meeting in Paediatric Neurology

november 2026

05novAll Day07Autism Medical & Research Summit 2026 (AMRS)

11nov(nov 11)9:0012(nov 12)16:00Speciallægeuddannelses kursus - Klinisk Genetik 2

25nov(nov 25)9:0026(nov 26)16:00Speciallægeuddannelses kursus - Dysmorfologi

Guidelines under udarbejdelse

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Registration for ESHG 2026 is now open.

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16th European Epilepsy Congress 5-9 September 2026 in Athens, Greece

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16th European Epilepsy Congress
5-9 September 2026 in Athens, Greece