Kalender

Fetal Alcohol Spectrum Disorders (FASD) are a major public health problem worldwide: alcohol consumption during pregnancy is one of the leading non-genetic and potentially preventable causes of neurodevelopmental disorders (NDDs) and lack of social integration.

In France, for example, it is estimated that nearly 5,000 children are born each year with brain damage due to prenatal alcohol exposure. Rarely screened and then underdiagnosed, these particularly vulnerable children will face disabilities both at school and in everyday life. In adulthood, around 500,000 people are affected to varying degrees. Most of them are unaware of the cause of their troubles and do not receive any specific support, with considerable individual and collective human costs.

However, early detection, diagnosis, and appropriate support starting in early childhood can make a difference and enable each of these people to develop their full potential for a better integration and participation in society.

Awareness of FASD is poor among the general public and even among healthcare professionals, who need an improved training on the subject. Furthermore, fundamental and clinical research is essential to bring about change in FASD and other NDDs: but here again, investment is not in line with the challenges.

In this context, the EUFASD 2026 Conference is an exceptional opportunity at the European level to highlight the issue of FASD and to support objectives aiming at structuring the community of associations, healthcare and support professionals, as well as researchers.

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We are delighted to invite you to the Annual Society for Research into Hydrocephalus and Spina Bifida (SRHSB) Conference, taking place from September 16-18, 2026, at the Amsterdam UMC Hospital, in Amsterdam, the Netherlands.

Since its founding in 1956, the SRHSB has been committed to advancing knowledge, fostering understanding, and supporting research aimed at the prevention, treatment, and management of hydrocephalus and spina bifida.

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Symposiet er tilrettelagt for at styrke det nationale samarbejde, udbrede og dele viden samt etablere multidisciplinære forskningsgrupper indenfor arvelig tarmkræft (HNPCC).

Årets keynote speaker er:
Principal Investigator og PhD Laura Valle
fra Catalan Institute of Oncology, IDIBELL, Barcelona, Spanien. Laura er forskningsleder i det spanske ”Hereditary Cancer Program”, som kombinerer genetisk rådgivning, molekylær diagnostik og banebrydende forskning. Laura vil fortælle om de mange forskellige – og særligt de nye – arvelige genetiske varianter, der kan give en øget risiko for at udvikle tarmkræft.

Derudover vil du blive præsenteret for ny forskningsbaseret viden og få et indblik i den nationale og inter-nationale forskning basereret på HNPCC-registrets data. Du vil høre om nyligt opstartede ph.d.-studier indenfor genetik, molekylær diagnostik og alternative kontrolprogrammer. Der vil også være oplæg omkring cirkulerende tumor (ct)DNA-baseret kontrol for urinvejskræft, prostatascreening i Lynch syndrom og effek-ten af immunhistokemisk analyse af ny-diagnosticeret gynækologisk kræft.
Det er et nationalt møde, men det meste af programmet vil foregå på engelsk.

Deltagelse på mødet er gratis.

Invitation til HNPCC Symposium 2026

Program for HNPCC Symposium 2026

Across three days, the agenda, shaped by our scientific committee of Nature journal editors, will explore key topics shaping the next decade of personalised care:

Omics at the bedside
Translating multi-omics approaches into clinically actionable insights for diagnosis and treatment.

Diversity in data, equity in care
Strengthening global representation in biobanks and risk models to ensure the benefits of precision medicine reach all populations.

Precision health implementation
Tackling infrastructure, governance, regulation and scalability challenges head-on.

Biomarkers and early detection
Discovering and validating predictive molecular signatures across diseases and populations to enable earlier, more precise decision-making.

Precision therapeutics and targeted delivery across the life course
From gene and cell therapies to next-generation vaccines, advances in women’s health, neurodegenerative disease, longevity and more.

Integrating responsible artificial Intelligence in precision health
Embedding machine learning, large language models and digital twins into clinical workflows safely, transparently and with patient trust at the centre.

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This meeting is intended to enable researchers in various fields of Paediatric Neurology to meet colleagues in the same field in order to facilitate collaboration, and to foster the building of research networks. The first meeting took place in October 3 – 4, 2008 in Tübingen, Germany in collaboration with the German speaking Paediatric Neurology Society (GNP). This meeting was formerly run as “Wissenschaftliche Statuskonferenz” of the GNP (German-speaking Society of Paediatric Neurology). The general aim of the meeting is to support especially young researchers to meet their colleagues in the field for an exchange in order to facilitate collaboration and to extend or to build up research networks. The programme is structured with parallel sessions for several (currently ten)  10 WORKING GROUPS (approximately 3 hours). Invited plenary lectures of interest to all working groups to be organized by two working groups (4 – 6 lectures, 30 min. per lecture). Feedback from the working groups in plenary sessions.

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ERN EURO-NMD and FILNEMUS are pleased to announce the third edition of the Summer School on Multidisciplinary Management of Neuromuscular Diseases, taking place in Marseille, France, from 21–24 October 2026.

This interactive programme will combine lectures, clinical cases, practical sessions and group work, with a focus on the multidisciplinary care of people living with neuromuscular diseases. Topics include rehabilitation, respiratory and cardiac care, psychological support, palliative care, pregnancy, and quality of life.

More info here!

Enevia Health invites you to AMRS 2026, an international event for multidisciplined researchers, clinicians, medical specialists and families/ carers of Autistic people. This event is specifically dedicated to high-support Autism, a subgroup representing approximately 30% of the Autistic population. Based on a global prevalence of 1% (1 in 100), this corresponds to an estimated 1.35 million individuals in the European Union and over 24 million worldwide. This subgroup of Autistic individuals requires substantial, or very substantial, daily support due to limited functional communication, co-occurring intellectual disability, and significant behavioural or medical complexities. Despite the scale and severity of need, this population remains significantly under-represented in research and greatly underserved in clinical pathways.

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The European Network Conference on Chromatinopathies (EU-CHROMNet) will take place from 25 to 27 November 2026 at the Izmir Biomedicine and Genome Center (IBG), Türkiye.

More info here!