Kalender

We are excited to continue the legacy of the Manchester Dysmorphology and Developmental Disorders Conference in 2025. Join us for another opportunity to immerse yourself in the latest developments in rare disease research, connect with leading experts, and contribute to breakthroughs that shape the future of patient care.

More info here

Kursets nummer: 252703
Kursets navn: Genetisk rådgivning og kommunikation
Dato for kursus: 25-28. november 2025
Sted: Aarhus – Fremmøde d. 25.-27. nov. Online d. 28. nov.
Delkursusleder:  Malene Lundsgaard, Lone Krøldrup Christiansen, og Christina Daugaard

The 2nd International Conference on Clinical Research Networks for Rare Diseases, organised by ERDERA, Rare Diseases International and IRDiRC, will take place in hybrid format from the 9-10 of December, 2025 in Heidelberg, Germany. Under the theme “Mobilising the Global Rare Disease Clinical Research Ecosystem”, this global event will gather experts and stakeholders from across the rare disease community to strengthen collaboration in clinical research networks.

Event details

Date: 9–10 December 2025
Format: Hybrid – online and in-person participation available
Registration: here.
Further information: Programme details, speakers, and registration will be announced shortly.

Kursusnummer: 262701
Kursets navn: Genetisk epidemiologi
Dato for kursus: 19.-21. januar 2026
Sted: Aarhus
Delkursusledere: Nis Brix, Anneli Skjelmose Bolund, Lone Sunde

Kursusnummer: 262702
Kursets navn: Cytogenetik
Dato for kursus: 10. -11. marts 2026
Sted: Aarhus
Delkursusledere: Iben Bache, Anne Skakkebæk

Årsmøde 2026 Dansk Selskab for Medicinsk Genetik

27-28 marts 2026

EuroNDD Workshop 2026 is a 2-day European meeting dedicated to advancing care and research in genetic neurodevelopmental disorders (NDDs).

Organised by the European Reference Network ERN-ITHACA and supported by the European Union, the workshop fosters cross-border, multidisciplinary knowledge exchange and collaboration.

The rapid rise in genetic diagnoses has many implications for both clinical practice and pre-clinical research. To address these challenges and opportunities, EuroNDD 2026 will focus on four core themes:

1. Understanding neurobiology through genes, disease mechanisms, model systems, and genotype-phenotype correlations
2. From molecular diagnostic to intervention
3. Multidisciplinary diagnostics and interventions translated into a holistic (heath)care network
4. Health information system and data availability: the ethical, legal and biopsychosocial data (re)use

The programme will feature plenary and parallel lectures, roundtable discussions, mini teaching and training workshops, abstract presentations, and poster pitch sessions, all aligned with these four themes.

Abstract Submission & Regristration 

EURORDIS is launching the 2026 edition of its Open Academy School, that will be held next year in Barcelona on May 25-28;

This course offers intensive, face-to-face training for both patient advocates and researchers on Medicines Research & Development and Scientific Innovation & Translational Research. The program will also include sessions on patient engagement and leadership as well as one off-site visit to a research facility/hospital,. Joining this course will also allow you to network with fellow patient advocates and researchers, supporting each other in learning and practice during the training and beyond.

Schools are delivered in English in a blended format, comprising e-learning modules, pre-training webinars and face-to-face intensive days.

For more information and to register: Open Academy Schools – EURORDIS Open Academy

Kursusnummer: 262703
Kursets navn: Klinisk Genetik 2
Dato for kursus: 11.-12. november 2026
Sted: København
Delkursusleder: Trine Bjørg Hammer, Pernille Axel Gregersen

Kursusnummer: 262704
Kursets navn: Dysmorfologi
Dato for kursus: 25.-26. november 2026
Sted: Aalborg
Delkursusleder: Irene Kibæk