Rare Diseases Ireland: EU Presidency, Dublin

Rare Diseases Ireland: Research as Care – Why Rare Diseases Matter for Europe’s FutureFriday

A rare disease themed Associated Event of Ireland’s Presidency of the Council of the European Union, this event explores how research and innovation can become the standard of care for all rare diseases — building momentum for a coordinated EU Action Plan, examining the Biotech Act’s role in strengthening Europe’s innovation base and competitiveness, and demonstrating what happens when patients are true partners.
Date: 13 November
Venue: Radisson Blu Royal Hotel in Dublin
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Rare Diseases Associated EU Presidency event